Alternative Guide to NAFAO Disability Related Expenditure
Alternative
to NAFAO calculations on DRE
Most
people who have or need Social Care should be aware of disability related
expenditure (DRE). You can find more info in our blog here: https://haloabletec.blogspot.com/2022/05/disability-related-expenditure-updated.html
People
may be aware that a lot of DREs and what you are awarded, relies on
calculations made by an organisation called National Association of Financial
Assessment Officers. They provide guidance which is used by about 300 local
authorities on what to give to people claiming DREs. Most of their calculations
especially with regard to utilities are based on averages, and potentially
outdated information.
Unfortunately,
though a number of people have tried to contact them, they are locked up
tighter than MI6, who at least have a free phone number. They do now have a
leave message service on their website. Any one received a response?
The issue
is for most people, is that the annual document they produce is not consulted,
nor views of people taken into consideration.
Through
this blog I want to go through some of the figures they use and why these
aren't appropriate for people who use the care system these days.
Gas and
Electric
NAFAO use
national statistics charts to work out an average for prices. The issue here is
there are only 818, 000 people use the care system, and a lot of those people are in care homes so have no need of DRE. For those who actually are claiming, are such
a small number. There are 67.33 million people living in the UK. This number
will hugely affect the national statistics and give a much higher average
cost. It should instead work out an average of the lowest percentile of
usage to be more accurate. Taking into consideration costs of disability as
identified by Scope: https://www.scope.org.uk/campaigns/extra-costs/disability-price-tag-2023/
One of
the other issues I see is that there have been many recent judicial reviews,
where the judges have repeatedly criticised and ruled against policies that do
not look at individual circumstances and create general policies which
authorities then stick to and won't budge on.
Here are
just three such cases which I've summarised for easy reference:
Royal
Borough of Windsor & Reading
https://haloabletec.blogspot.com/2024/03/disability-related-expenditure-case.html
Suffolk -
https://haloabletec.blogspot.com/2022/07/simplifid-read-of-pre-judicial-review.html
Norfolk -
https://haloabletec.blogspot.com/2020/12/lessons-from-norfolk-social-care.html
In this
last case, many authorities have supposedly had alternative advice saying the
case is wrongly decided and not adhering to its findings because it only applies
in Norfolk.
Both
these arguments, in my view, are wrong. All judicial reviews set what is known
as precedent at a national level. This means other judges will follow this
ruling until a much higher court has ruled differently. As this hasn't
occurred, the decision to whether you
think it is right or wrong or what advice you've received is moot , the case
still stands and can be used for argument purposes as correct at this time.
Personally
and for most the cost of heating is a serious issue. I am non ambulant; I can
just move my hands to type. This means I do not generate heat from moving, and
for me, cold makes me susceptible to chest infections. My heating is on
generally throughout winter at 18 Deg C. This isn't guesswork but based on
advice from the government. https://www.gov.uk/government/publications/keep-warm-keep-well-leaflet-gives-advice-on-staying-healthy-in-cold-weather/top-tips-for-keeping-warm-and-well-this-winter
This
states:
“Keep
your home warm
You
should heat your home to a temperature that is comfortable for you. Low indoor
temperatures can have a serious impact on your health, especially if you have
medical conditions or are older.
Simple
changes can help to keep you and your home warm. These include:
• Try to
heat rooms you spend a lot of time in, such as the living room or bedroom, to
at least 18°C”
My advice
would be contact your local suppliers and ask them what the local minimum cost
is to heat your property is. Use this as a figure or calculate what the cost of
heating your home would be for, say at least, eight months at the government's
own advised temperature and ask for that information.
Then add
the additional bits below. I say local as we all know usage in the far north
could be much higher than those living in the south. Temperature variations can
make a big difference to your heating costs.
We keep
hearing how health and care should be using technology more. It's no different
here, there are a number of sites now available such as below which will
work out individual costs of items for you. Also available is the power usage
and cost of any additional health and care equipment. For general usage see: https://smartmoneytools.co.uk/tools/energy-cost-calculator/ or
https://www.sust-it.net/energy-calculator.php, both of
which are pretty simple to use.
Wet
appliances
Washing machines, dishwashers and tumble dryers account for 14% of a typical
energy bill.
Using the
above will give a clearer cost per wash, which you can use to say well due to
my disabilities it costs say 12p per use for bed sheets and clothes x 52.
This will give you a more accurate figure to claim.
Electric
wheelchairs/ Mobility Scooters
For a
large battery, for example at 24 volts and 50Ah, the costs come to a weekly
charge of £0.58, monthly: £2.35, and annually: £28.22.
Don't
forget to ask for cost for servicing. if
purchased independently add battery
usage and maintenance costs via receipts.
NAFAO
guide calculates wheelchair costs on a ten year basis, whereas the NHS own
website says it lasts five years. Advice from the independent living page
states- The wheelchair is expected to last five years, but if your clinical
needs change in the meantime, you can ask to be reassessed.
CPAP
A CPAP
machine which uses 40 watts of power and runs eight hours each night would
consume: 40 watts x 8 hours, or 320 watt hours each day. So based on my usage for 12 hours a day;
Calculator available from RapidTables.com
Here's an
article on the subject.
Running a
CPAP used to cost approximately £5-a-month according to founder Kath's
estimates. But as energy bills rise, it's thought this has risen to around
£10-a-month in the past 12 months - an extra £60 a year which some people will
struggle to find.
1 Jun
2022 https://www.independent.co.uk Woman
'forced to switch off life- saving ventilator' due to soaring energy bills -
independent news June 2022
For other
items see list below:
https://www.medequip-uk search
cost of living.
Hoists
A HP is
roughly 750 watts. So if your 750W Hoist is operating at maximum load for 1
minute, it will be using 0.75*(1/60) KWh of electricity, this works out at
0.0125 KWh.
29 Jun
2020 https://www.quora.com >
How-much. How much electricity is consumed by a
hoist of
1 HP? - Quora
I've
tried to cover as many different items as possible here, obviously there will
be others, why not look them up and provide these as evidence.
Finally
one last option, items such as shown below are easily available for around £10
(don't forget to add this as disability related expenditure) and give you
accurate figures to use for claims and are simple to use.
This blog post has been written to allow people and local authorities ideas which will relate to more practical & individual claims being made for Disability Related Expenditure.
Links to specific sites are for information only and as a
guide. No payment has been received nor are we promoting any other particular
organisations.
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